I had to get tested because the sooner you get tested and begin treatment, the longer you can live. Many of our people do not get tested or treated and end up hospitalized, which is why it is important to begin treatment as soon as possible.
Disclosure refers to telling another person about your HIV diagnosis. I recommend not disclosing until you are sure you will get support. Honestly, many Indian people I know have been rejected by their families, friends and tribes. This is one reason why many tend to turn to alcohol and drugs to escape the pain. I have been through this but with my Higher Power guiding me, I managed to ask for help and support. In time, things changed for the better. Six years later, people throughout the world have accepted and supported me.
With the many cuts in federal funding for AIDS services, several agencies in Phoenix had to shut their doors. My health care provider and case managers at the Phoenix Indian Medical Center are excellent. They truly care about people living with HIV/AIDS. A good relationship with care providers is crucial to good overall health. Other agencies can assist depending on your needs.
It’s important to not let shame or pride stand in the way of living a healthy life. If you have any questions about agencies or services, please contact your local health officials.
Living with AIDS is a full-time job. Some days are good and some aren’t. There are times when I have to take several days off from work to see the doctor, meet with case managers or do blood work. I’m also infected with Hepatitis C, so I’m trying to balance two deadly viruses at the same time. What keeps me going is to surround myself with people who have a positive outlook on life.
When I was diagnosed in 2002, I never thought I’d be alive in 2008! I travel the country sharing my story. I continue to tell our tribal, state and federal leaders about the need for services for our people who have been overlooked for centuries. I continue to help those who are in dire need of someone to talk to.
I’m only one person with one voice, and that is the first step toward prevention: education, and constantly reminding leaders that testing positive is not enough. We must help those living with AIDS, including family members left behind. Our stories must be told!
– Isadore Boni
Phoenix, Ariz.